4 Things People Living With Alzheimer’s Disease Wish You Knew

An Alzheimer’s diagnosis is a game changer. It changes everything about the individual’s life, as well as the lives of all of those around them. It is very difficult to know how to act or react because it seems as though your loved one is changing right before your eyes. However, there are a few tips that come directly from the mouths of Alzheimer’s sufferers that they want to make sure you, as a loved one, will remember.

I’m Still Me.

It is easy to forget that behind the memory loss, mood swings and behavioral changes, the person you’ve loved and known your whole life is still the same person. Oftentimes, patients become defined by their diagnosis and it destroys the remaining time left for themselves, their family, and their friends. Don’t forget the things that they love, whether it’s music, sporting events, or any other hobbies. Be sure to continue to engage them in any and all ways possible.

I’m Okay. 

A lot of online advice has to do with keeping the patient active, changing their diet, and keeping them involved with people. While this advice is definitely beneficial, the early diagnosis is still a time when the patient can determine what is best for them. If they have lived a life where they enjoy alone time, it can actually be detrimental to force them into social activities they may feel uncomfortable with. Be sure to be sensitive to the things you are trying to force upon them. Are they things that your loved one would enjoy even before their diagnosis? This is a good baseline.

Stay Positive. 

It seems like everything has gone wrong. The decline of the patient’s health and ability to complete simple daily tasks drastically decreases. It is easy to only pay attention to how things are getting worse and catastrophize the situation. Be sure to remember that as many things are going wrong, there are equally as many that are still fine. Help your loved ones pay attention to the positives instead of harping on the negatives.

Your Visits Count. 

Even though as the disease progresses, your loved one may not recall your visit or even your identity, it is still important to them that you spend time with them. Alzheimer’s doesn’t mean that the patient is incapable of meaningful relationships or that they no longer need relationships. Your loved one might need you more! Be sure to keep up the visits and keep your loved one involved in your life and what is going on. It will mean a lot to them.

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Meet the Author

NATALIE MCFARLAND, BSN, RN, CDP

Natalie has compiled over eighteen years experience providing outstanding care to people with Alzheimer’s disease and dementia. In addition to being a certified Alzheimer’s and dementia care trainer, McFarland is a licensed continued education instructor for nurses and social workers through the Illinois Department of Professional Regulations. She has also developed several Alzheimer’s research partnerships. Included in those projects were Dr. Virginia Cruz, Ph.D., RN, Associate Professor of SIUE and Dr. George Grossberg, M.D., Medical Director of the Department of Psychiatry and Neurology at Saint Louis University. Natalie is a graduate of Southern Illinois University.